randymorris
March 22nd, 2011, 11:40 PM
One week into my hypo hell before the RT131 treatmant, there is food everywhere and nothing to eat! I swear this low iodine diet is worse than anything before me, and I made diabetic diets for my wife.
I feel like a wet washcloth, no energy and hot and cold chillls that would rival anything that menopause could dish out. I downloaded the Iodine free cookbook at thy/ca and although there are good recipies there, I dont like most of it. I am basic living off of water, meat and popcorn (unsalted and unbuttered) On top of all this I have Parkinson's disease and I choke very easy...
I had 90 % of my thyroid removed and now (finally) 9 months later I get my RI131 (had to wait for insurance reasons) Fortunally for me I have enough fat stored to ride me through this (ha ha) I am not sure of the dose I am getting but its low, then a stronger one if needed at a later date.
Not really scared, just worried about choking and no one being there for me plus I blank out for an hour or so every day and dont know who I am or my family. My neurologist thinks its pre dementia but thats for another forum.
Its hard to find iodine free food and we dont have the money to buy raw ingredients to make homemade sauses and stocks. I feel like a prosioner and I haven't even started my isolation yet. They got all the cancer out but left 10% of my thyroid around some nerve, the RI131 is suppose to desolve the rest.
I have a headache that would kill a moose and moose isnt on my list of iodine free foods! (grrrr) LOL guess I needed to vent a little, I am so frustrated I am close to saying the heck with it all and just take my chances...
I feel like a wet washcloth, no energy and hot and cold chillls that would rival anything that menopause could dish out. I downloaded the Iodine free cookbook at thy/ca and although there are good recipies there, I dont like most of it. I am basic living off of water, meat and popcorn (unsalted and unbuttered) On top of all this I have Parkinson's disease and I choke very easy...
I had 90 % of my thyroid removed and now (finally) 9 months later I get my RI131 (had to wait for insurance reasons) Fortunally for me I have enough fat stored to ride me through this (ha ha) I am not sure of the dose I am getting but its low, then a stronger one if needed at a later date.
Not really scared, just worried about choking and no one being there for me plus I blank out for an hour or so every day and dont know who I am or my family. My neurologist thinks its pre dementia but thats for another forum.
Its hard to find iodine free food and we dont have the money to buy raw ingredients to make homemade sauses and stocks. I feel like a prosioner and I haven't even started my isolation yet. They got all the cancer out but left 10% of my thyroid around some nerve, the RI131 is suppose to desolve the rest.
I have a headache that would kill a moose and moose isnt on my list of iodine free foods! (grrrr) LOL guess I needed to vent a little, I am so frustrated I am close to saying the heck with it all and just take my chances...