leg pain

[Andros]

Originally Posted by sidpb

So I go in tomorrow to have another blood test done to determine if my liver is better. I finished off the Amoxicillin yesterday and guess what, today I have a sore throat. Great! There is some pressure and 'warm' pain between my ear and my jaw joint on the side the throat is sore. I'm never gonna get this sorted out... I have been gaining weight (8lbs in 1 week) but still have the shakey hungrys which I'm trying my best to ignore. Still working out and have energy to ride the horses and have cleaned the house even though I've been off the Methimazole for a week. Must still be in my system. I have started having the heat intolerance again. It's come back with a vengeance. Been getting up about 4:00 AM because I can't sleep. And that's after waking up several times during the night. {{sigh}}

Oh, dear...............not happy to hear all this. Well, I will say that if your thyroid is inflamed, it can make your throat sore and your ears ache as well as the jaw. Yes, indeed. And if that is the case, AB won't help that much.

Gosh, do you think you are having water retention? That is a lot of gain in one week? Are you breathing well, heart beating okay? Pleural effusion would be a concern.

Will you see the doctor before you lab? I think it would be a good idea. The weight gain is a huge concern in my mind.

Will you let us know?

[BionicThyroid]

sidpb- You sound so much like me- I had to come off of the Methimazole for 10 days for the RAI uptake- It was HORRIBLE!! Also- my endo had me on 80mg Propranolol 4x a day for several weeks. My BP dropped so we gradually decreased it. I currently take 40mg, 4 times a day. Propranolol has given me more relief from symptoms than any other medication I have taken. I too gained weight quickly after starting the med's. It puzzled the doctor because my thyroid levels increased even though I was gaining weight. (14 lbs. in 10 days!!!)

[sidpb]

In the mornings I weigh 120 lbs. In the evenings I weigh 114lbs. WEIRD! Not sure what the deal is but I am gaining some weight as I originally lost down to 110 lbs (from 126 lbs). Endo said he wants to look at the labs before he decides on the best course for my throat. He said there were white spots in my throat although this time I didn't see any. I feel a little feverish tonight but not like it was before the AB's. I didn't tell him about the weight gain. I'm going to speak with him again in the morning after he reviews my labs. I've also got a rash of sorts on my neck, shoulders and chest. Looks like the measles with little white pustules. BOY do I feel attractive, lol! I don’t feel like I’m retaining water and I do take a pill for that, but who knows?

BionicThyroid, I am taking Propranolol 60mg AM and 60mg PM. It does help with the symptoms but doesn’t ever seem to help with the heat intolerance or the hunger/low blood sugar feeling. I generally don't sweat but I am just drenched several times a night and where ever my skin is touching the bed it actually feels like its burning. Sleep has been pretty elusive.

I just wonder what they can give me to bring my thyroid down to a normal level so they can remove it if my liver can't take the Methimazole?

[Andros]

Originally Posted by sidpb

In the mornings I weigh 120 lbs. In the evenings I weigh 114lbs. WEIRD! Not sure what the deal is but I am gaining some weight as I originally lost down to 110 lbs (from 126 lbs). Endo said he wants to look at the labs before he decides on the best course for my throat. He said there were white spots in my throat although this time I didn't see any. I feel a little feverish tonight but not like it was before the AB's. I didn't tell him about the weight gain. I'm going to speak with him again in the morning after he reviews my labs. I've also got a rash of sorts on my neck, shoulders and chest. Looks like the measles with little white pustules. BOY do I feel attractive, lol! I don’t feel like I’m retaining water and I do take a pill for that, but who knows?

BionicThyroid, I am taking Propranolol 60mg AM and 60mg PM. It does help with the symptoms but doesn’t ever seem to help with the heat intolerance or the hunger/low blood sugar feeling. I generally don't sweat but I am just drenched several times a night and where ever my skin is touching the bed it actually feels like its burning. Sleep has been pretty elusive.

I just wonder what they can give me to bring my thyroid down to a normal level so they can remove it if my liver can't take the Methimazole?

They can give you Lugol's solution so you won't dump thyroxine during surgery and after.

http://en.wikipedia.org/wiki/Lugol's_iodine

Talk to your doc about this and let us know.

[sidpb]

The Endo called this afternoon and said my labs were pretty much the same. My white cell count was down slightly but all the markers were there for a bacterial infection. My liver was very slightly better but not near enough. He said we would not be able to continue on the Methimazole or any other anti thyroid medication. I ask about the Lugol's solution and he said it has to be taken with the anti thyroid meds or it will actually elevate the thyroid hormone. He said he wasn't sure what to do here so he was going to call both my GP and the surgeon to see what they suggested.

Called me back later this afternoon and said my GP said to run another course of AB for the infection and the surgeon said we need to do the surgery ASAP before my levels rise any higher. The surgeons office was supposed to call me to schedule an appointment with him on Monday so he can check my BP and heart rate to make sure everything is good still, but I didn't hear from him. I'm a little worried that my thyroid is not stable and I still have a bacterial infection in my throat, but I guess the surgeon doesn't think it's a problem. The Endo suggested I think again about the RAI but I REALLY don’t want to go that way. I want the quickest most effective treatment and everything I’ve read points to surgery. I guess I’ll just have to see what the surgeon says.

[Andros]

Originally Posted by sidpb

The Endo called this afternoon and said my labs were pretty much the same. My white cell count was down slightly but all the markers were there for a bacterial infection. My liver was very slightly better but not near enough. He said we would not be able to continue on the Methimazole or any other anti thyroid medication. I ask about the Lugol's solution and he said it has to be taken with the anti thyroid meds or it will actually elevate the thyroid hormone. He said he wasn't sure what to do here so he was going to call both my GP and the surgeon to see what they suggested.

Called me back later this afternoon and said my GP said to run another course of AB for the infection and the surgeon said we need to do the surgery ASAP before my levels rise any higher. The surgeons office was supposed to call me to schedule an appointment with him on Monday so he can check my BP and heart rate to make sure everything is good still, but I didn't hear from him. I'm a little worried that my thyroid is not stable and I still have a bacterial infection in my throat, but I guess the surgeon doesn't think it's a problem. The Endo suggested I think again about the RAI but I REALLY don’t want to go that way. I want the quickest most effective treatment and everything I’ve read points to surgery. I guess I’ll just have to see what the surgeon says.

Have they done a throat swab? I am wondering if you have thrush instead of infection in which case AB could make it worse.

Anyway, by now you surely have the surgery set up? I will keep you in my prayers and thoughts for all to go well and to guide the surgeon's hand also.

When you are able, send a smoke signal our way.

[sidpb]

No they never did a throat swab. I thought he might but he just looked and read my blood work and determined it was a bacterial infection. It goes completely (or at least feels like it does) away for several week then comes back with a vengence for a couple of days then goes away again. EXCEPT for this last time. It came back less than 24 hours after I finished my AB. Never heard from the surgeon so I'll call first thing on Monday and try to get my hiney in there before it's too late. Thank you so much for your prayers, thoughts and help Andros, your a godsend!

[Lovlkn]

They can give you Lugol's solution so you won't dump thyroxine during surgery and after.

http://en.wikipedia.org/wiki/Lugol's_iodine

Talk to your doc about this and let us know.

They are also called SSKI and it should settle your thyroid and makes the thyroid less vascular during surgery.

I know you are in a hurry to have your thyroid removed but please be sure the surgeon you choose does several thyroid surgeries a week to guarantee you are getting someone with experience.

[Andros]

Originally Posted by sidpb

No they never did a throat swab. I thought he might but he just looked and read my blood work and determined it was a bacterial infection. It goes completely (or at least feels like it does) away for several week then comes back with a vengence for a couple of days then goes away again. EXCEPT for this last time. It came back less than 24 hours after I finished my AB. Never heard from the surgeon so I'll call first thing on Monday and try to get my hiney in there before it's too late. Thank you so much for your prayers, thoughts and help Andros, your a godsend!

You are sooooooooooo welcome and please let us know when the surgery is set up.

I get on the platform about indiscriminate use of antibiotics. When a patient fails to respond the first time to an AB, it is time for a swab. There is gram positive, gram negative, fungal. You can't just be a guina pig for a crap shoot all the time. Not to mention the fact that the patient is never well. Aaaaaaaaaaaaaaaaaargh.

[sidpb]

Originally Posted by Lovlkn

They are also called SSKI and it should settle your thyroid and makes the thyroid less vascular during surgery.

I know you are in a hurry to have your thyroid removed but please be sure the surgeon you choose does several thyroid surgeries a week to guarantee you are getting someone with experience.

My endo assured me my surgeon has done many, many thyroid removals and he's very good so that's a relief. I'm in a hurry to get better, not in a hurry to get worse or "worse"!