Exophthalmos, I have a question please

[Gio111ca]

Thx for the input Andros, I appreciate it.

I too agree on the fact that I will wait until my levels become under control, unless I see an urgency for my eyes, which I don't at this time.

Your case looked a bit more severe than mine, I am happy that it is for the most part behind you. Had it not been for the bags under my eyes, nobody would guess I have thyroid issues (even that last opt said my case isn't too bad), guess I'm lucky on that angle.

Thx again for the feedback Andros and take care.

[Andros]

Originally Posted by Gio111ca

Thx for the input Andros, I appreciate it.

I too agree on the fact that I will wait until my levels become under control, unless I see an urgency for my eyes, which I don't at this time.

Your case looked a bit more severe than mine, I am happy that it is for the most part behind you. Had it not been for the bags under my eyes, nobody would guess I have thyroid issues (even that last opt said my case isn't too bad), guess I'm lucky on that angle.

Thx again for the feedback Andros and take care.

You are welcome; I am here for you and so are the other posters. Yes, my eyes were almost completely out of the orbits; very severe is an understatement.

[Gio111ca]

Maybe I'll take this opportunity to ask you a question Andros, if you don't mind.

I have been seeing fuzzy out of my left eye lately(ex:digital clock digits look a little fuzzy), never had that problem before, it's fin with my right eye. I do wear glasses, I am farsighted.

I have also noticed I am starting to have trouble in the evening focusing with my vision (ex: TV guide on screen), goto concentrate and focus on my vision to see letters on screen clearly. Was just wondering if you had any tips/suggestions/experiences on the subject? You know I quit smoking and eat good. I'm am scheduled to see a eye optic nerve specialist on March 1st.

Thank you again.

[Andros]

Originally Posted by Gio111ca

Maybe I'll take this opportunity to ask you a question Andros, if you don't mind.

I have been seeing fuzzy out of my left eye lately(ex:digital clock digits look a little fuzzy), never had that problem before, it's fin with my right eye. I do wear glasses, I am farsighted.

I have also noticed I am starting to have trouble in the evening focusing with my vision (ex: TV guide on screen), goto concentrate and focus on my vision to see letters on screen clearly. Was just wondering if you had any tips/suggestions/experiences on the subject? You know I quit smoking and eat good. I'm am scheduled to see a eye optic nerve specialist on March 1st.

Thank you again.

If it walks like a duck.................(you know the rest.) Yes; this is typical. One eye is always worse than the other and that usually is the left eye for whatever reason, I do not know. It sounds like things are happening and I am not happy to hear it.

It would be good to get a "baseline" measurment of your eyes so that if they start to protrude (even a little bit), this can be picked up.

Do you have photophobia (aversion to bright light?)

You might find this site helpful....... http://www.kellogg.umich.edu/patient...s.disease.html

And the only suggestion I could give would be to stay under the care of a good Ophthalmologist who understands Thyroid Eye Disease.

Glad you were able to quit smoking. I smoked for 44 years and this Feb. will be 3 years smoke-free. Hubby too!

[Gio111ca]

Hi Andros,

No, I don't have photophobia. I was able to schedule another appointment with another ophthalmologist, but only in April, hopefully he will have some cancellations, he also specializes in Graves. It is weird that I sometimes see like a little sun in my right vision at times (inwards), but that issue has been there for at least a year, will ask this new opth.

My focus is fine in the morning, it's at night that I must focus to see the TV guide and thingslike that; it's like I'M close to seing double, not sure. Can this condition go away on its own you think?

I am waiting for my latest test results by mail and will post results.

Regards.

[Andros]

Originally Posted by Gio111ca

Hi Andros,

No, I don't have photophobia. I was able to schedule another appointment with another ophthalmologist, but only in April, hopefully he will have some cancellations, he also specializes in Graves. It is weird that I sometimes see like a little sun in my right vision at times (inwards), but that issue has been there for at least a year, will ask this new opth.

My focus is fine in the morning, it's at night that I must focus to see the TV guide and thingslike that; it's like I'M close to seing double, not sure. Can this condition go away on its own you think?

I am waiting for my latest test results by mail and will post results.

Regards.

Good to hear from you. I have never heard of permanent unassisted remission of GED.

I believe that lying down at night lessens the inter-occular swelling and as the day wears on, the pressure builds up in the orbits. I had similar experience. Yes; I had strabisimus and still do. I had so much eye surgery, I just could not bear more plus, strabisimus surgery must be redone every 7 years or so. Few people know this. So I opted out on that and have prisms in my lens which correct that.

If you are having double vision now, your ophthalmologist can Rx paste ons for your lens that will help you a lot!

Glad you do not have photophobia!! Boy is that ever painful! Plus, you just plain can't see when that happens.

Good to hear from you!

Will be looking forward to those results and ranges.

[Gio111ca]

Hi Andros,

I am hoping my GED stabilizes after my Thytoid levels do, but that might just be wishful thinking. I don't know of any other treatment, although I mentionned my opto is almost ready to operate, but I have no idea for what nor what the operation involves, and that is why I found a second opto. I find the first opeation will only bring others, so I really want to avoid all of that.

I am looking into Grave's diest, but not too sure what that involves, but seems to be avoiding fish and brocolli and cheese and yogourts ... all things I eat, so not to sure about that.

[Andros]

Originally Posted by Gio111ca

Hi Andros,

I am hoping my GED stabilizes after my Thytoid levels do, but that might just be wishful thinking. I don't know of any other treatment, although I mentionned my opto is almost ready to operate, but I have no idea for what nor what the operation involves, and that is why I found a second opto. I find the first opeation will only bring others, so I really want to avoid all of that.

I am looking into Grave's diest, but not too sure what that involves, but seems to be avoiding fish and brocolli and cheese and yogourts ... all things I eat, so not to sure about that.

A healthy diet and life-style is certainly going to help. And so does wishful and POSITIVE thinking!!

As I have stated, early intervention is most most helpful so do get it and do what the ophthalmologist says for you to do w/ one caveat............hold off on the surgery only "if" your optic nerve and eyesight are not being compromised. When the eyes settle down is the time to assess and do surgery.

Let me repeat though, if you have an emergency, of course you must submit to surgery.

[Gio111ca]

Hi Andros,
I am seeing great improvement day by day on my eyesight and I attribute it all to the fact I quit smoking. I still see blurry from my left eye but it is not worrying me much ...

But what do you mean by ¨hold off on the surgery only "if" your optic nerve and eyesight are not being compromised¨.

Just for the sake of it, what would the surgery involve? Thank you again for all you insight.

[Andros]

Originally Posted by Gio111ca

Hi Andros,
I am seeing great improvement day by day on my eyesight and I attribute it all to the fact I quit smoking. I still see blurry from my left eye but it is not worrying me much ...

But what do you mean by ¨hold off on the surgery only "if" your optic nerve and eyesight are not being compromised¨.

Just for the sake of it, what would the surgery involve? Thank you again for all you insight.

A lot of people get talked into eye surgery (corrective and plastic surgery) to soon and often find they have to have it done again, often w/ a very bad outcome because of previous surgery.

I am talking about orbital decompressions, Levator surgery, strabisimus surgery.