leg pain

[judy.tony@tiscali.co.uk]

yes i have had aching legs for a year now, i have found when i hurt the top of my leg my doctor gave me pain killers and they took away the pain in my legs as well also my arm.

[Kiddlebit7]

Hi...I'm Laurie and I just joined today. After reading this post, I wanted to share some info, in case it helps anyone else. Several months ago, before I saw the endocrinologist and was diagnosed with Graves, my previous doctor ran a blood test for Vitamin D3 deficiency. The results showed the deficiency, so I started taking a D3 supplement that I picked up at my grocer.

When the bottle ran out, I forgot to get another. Gradually over a period of several weeks, the pain in my arms, legs and feet got worse. It hurt so badly that I couldn't sleep for several nights.

Fortunately, my sister is an excellent diagnostician. She was telling me how certain diseases rob your body of crucial vitamins and minerals. At which point the lightbulb went off over my head and I remembered about the D3.

So I started back on it immediately. That was about a week and a half ago and I'm happy to say the pain is down to a manageable amount. It's better when I'm mobile and worse when I lay down, (probably because the mattress pushes on the nerve endings) but at least it's at a level I can live with.

Next time you have bloodwork done, you might look into this : )

Hope it helps!

[critterz]

Thank all of you for showing me that I'm not crazy! I have had awful leg pain and have been hobbling all summer. I have lumbar degenerative disc and thought that is what was causing my pain so went to spine doc who gave me spinal injections. They did nothing for me, but I had never had the leg pain before. I had not been diagnosed with Graves at that time. I was eating so much Ibuprofen for my pain that I ended up with a perforated ulcer and had to have emergency surgery. The pain was that bad. Finally I got a new doc and was diagnosed with Graves in 2 days. I was put on PTU immediately and the pain in my legs finally disappeared. Unfortunately I had to quit taking the meds so i could get the RAI and the leg pain has returned. I just had RAI last week and am now back on PTU so hope it goes away as I walk alot at work and it definitely affects me in all areas of life, especially stairs. I have no doubt that the leg pain is completely related to the Graves! My endo said it was all part of it and they did not know why some people get it and others don't, nor did they know what causes it. My electrolytes and calcium was normal range.

[Andros]

Originally Posted by critterz

Thank all of you for showing me that I'm not crazy! I have had awful leg pain and have been hobbling all summer. I have lumbar degenerative disc and thought that is what was causing my pain so went to spine doc who gave me spinal injections. They did nothing for me, but I had never had the leg pain before. I had not been diagnosed with Graves at that time. I was eating so much Ibuprofen for my pain that I ended up with a perforated ulcer and had to have emergency surgery. The pain was that bad. Finally I got a new doc and was diagnosed with Graves in 2 days. I was put on PTU immediately and the pain in my legs finally disappeared. Unfortunately I had to quit taking the meds so i could get the RAI and the leg pain has returned. I just had RAI last week and am now back on PTU so hope it goes away as I walk alot at work and it definitely affects me in all areas of life, especially stairs. I have no doubt that the leg pain is completely related to the Graves! My endo said it was all part of it and they did not know why some people get it and others don't, nor did they know what causes it. My electrolytes and calcium was normal range.

When are you due for labs? I am just wondering if you have gone hypothyroid at this point and maybe should be taken off the PTU and placed on thyroxine replacement?

When does your doctor want to see you?

[MrGraves]

yes, leg feet and back pain, calf area and groin area pain can be almost 110% disabling and are related to the graves. Im on some meds for it but gettin prepped for a RAI I have a feeling here real soon.

IM sorry your legs are hurtin again. I was trying Yoga but it was just to painful as I am to far into the disease, but, I could see how if I wasnt so sore, it would be great and work. I stretch in bed, before I even get out of bed and thats hard 2 do but, gotta get up and get to work sometime. !
Ginger tea, its great for joint pain, its not intoxicating, it tastes great and
works real well in conjucntion with Doans back pain relief, OTC. God forbid you ask for somthing to feel better, youll be called a junk head.. if ya do, let it roll off your back.!!! Your NOT! & goto another Doc and if they try to give you tramdol / lorcet, refuse it, its very bad mentally for people with graves or atleast it was for me.

[sidpb]

I can't tell you how comforting this posting on Leg pain is. I've had terrible lower leg pain for several months now. Every time my grandson would touch my legs it would hurt. Like it does if you do something too strenuous and it makes your muscles sore. Finally a couple of weeks ago I was diagnosed with Graves Disease. SCARY! I have never had any big problems like this before. I've elected to just have my thyroid removed. Anyway I have looked everywhere for the leg pain symptom. This morning I couldn't even straighten my feed flat on the floor. I just hobbled around all day.

[Andros]

Originally Posted by sidpb

I can't tell you how comforting this posting on Leg pain is. I've had terrible lower leg pain for several months now. Every time my grandson would touch my legs it would hurt. Like it does if you do something too strenuous and it makes your muscles sore. Finally a couple of weeks ago I was diagnosed with Graves Disease. SCARY! I have never had any big problems like this before. I've elected to just have my thyroid removed. Anyway I have looked everywhere for the leg pain symptom. This morning I couldn't even straighten my feed flat on the floor. I just hobbled around all day.

Hi there and welcome to the board. Yes; this pain is called peripheral neuropathy and I have had it too. So badly in fact; I used to cry when trying to walk. My feet especially felt like every bone was smashed.

Are you having surgery or RAI? Let us know!

[MrGraves]

peripheral neuropathy

What is it called when you cant stand on your feet becuz your heels and toes feel smashed? Is it the same thing? peripheral neuropathy
Why dont the docs tell us these thigs... are you a secret ultra thyroid doc ahdros?
My feet dont bleed thank Jesus but Ive been getting random nose bleeds in the last month.
Please be careful with the pain killers, they work for a few weeks and then turn on you and amplify the pain.


D3 supplement , Kiddlebit7 I really blieve in that stuff, a vitamin called HT-3 keeps me from waking up ready to fight or cry, same as the D3, you can probly get it at wally world or your local market.

[Andros]

Originally Posted by MrGraves

peripheral neuropathy

What is it called when you cant stand on your feet becuz your heels and toes feel smashed? Is it the same thing? peripheral neuropathy
Why dont the docs tell us these thigs... are you a secret ultra thyroid doc ahdros?
My feet dont bleed thank Jesus but Ive been getting random nose bleeds in the last month.
Please be careful with the pain killers, they work for a few weeks and then turn on you and amplify the pain.


D3 supplement , Kiddlebit7 I really blieve in that stuff, a vitamin called HT-3 keeps me from waking up ready to fight or cry, same as the D3, you can probly get it at wally world or your local market.

You are a real funny bunny, MrGraves and we sure love a sense of humor around here!

Hah! If I told you I never graduated from the 10th. grade; would you believe that? No, I am not a doctor. Just a person much like who has stived to better my life. You might say I am one of God's many little miracles!!

Here is some info for you and anyone else who is reading this.

hypothyroidism — a condition in which your thyroid gland doesn't produce enough thyroid hormone — may cause peripheral neuropathy, such as carpal tunnel syndrome.

Peripheral neuropathy is damage to your peripheral nerves — the nerves that carry information between your brain and spinal cord and the rest of your body, such as your arms and legs. Peripheral neuropathy is often caused by diabetes and autoimmune diseases such as rheumatoid arthritis. But it may also be caused by other conditions, such as severe, long-term untreated hypothyroidism. The association between hypothyroidism and peripheral neuropathy isn't fully understood.

Signs and symptoms of peripheral neuropathy may include pain, numbness and tingling in the area affected by the nerve damage. It may also cause muscle weakness or loss of muscle control.

Treatment of peripheral neuropathy due to hypothyroidism is directed at the underlying hypothyroidism.

The above is also true when hyper. As a matter of fact it is usually far worse w/ hyperthyroid.

http://www.mayoclinic.com/health/hypothyroidism/AN01038

[sidpb]

Originally Posted by Andros

Hi there and welcome to the board. Yes; this pain is called peripheral neuropathy and I have had it too. So badly in fact; I used to cry when trying to walk. My feet especially felt like every bone was smashed.

Are you having surgery or RAI? Let us know!

I am having the surgery. I go see the surgeon tomorrow (Monday). I would like it ASAP. This is really screwing up my life. The first thing I noticed was I had to start dropping my weights because I couldn't lift as much... that was several months ago. Then I started loosing weight, which really didn't bother me, lol! Eventually tho, I started getting shaky and out of breath when just climbing the stairs. By this time I had given up on exercise and rarely wanted to ride my horses. Usually after I did I was so muscle sore I could hardly move my legs or back for a day or so. I'm a hairdresser so I need to be able to move. My calves started hurting about the same time I started dropping my weights. My grandson would come by and just touch my lower leg and it would hurt. I'm irritable, itchy, the muscles are hanging off my arms and legs like a 90 year old and I'm so weak. This is hard to take for me because I have always been a strength trainer and enjoyed being fairly active and strong even with my small stature. I have never been ill like this a day in my life. I currently take Propranolol (3 in the morning and 3 at night) to try to help with the symptoms. I doesn't seem to help the muscle wasting but does help a little with the shaking and irregular heart beat. I can't take anymore than that and it still doesn't take many of the symptoms away. Is that enough whining, or would you like more, lol!