Eye Bulge - TED - Graves

[Deckah]

I will follow through with the appointment and hopefully I have a doctor that sees things on my level and can somehow get back in for a proper test (I will bring up that list of things). If not I will asked to be referred to a endocrinologist.

I take it graves and the other thyroid diseases are all based off different acronyms like the above? Or was I just half-assed.


Thanks for the reply

[Andros]

Originally Posted by Deckah

I will follow through with the appointment and hopefully I have a doctor that sees things on my level and can somehow get back in for a proper test (I will bring up that list of things). If not I will asked to be referred to a endocrinologist.

I take it graves and the other thyroid diseases are all based off different acronyms like the above? Or was I just half-assed.


Thanks for the reply

Yes, they are. I do use acronyms but "usually" put in parentheses what they mean for we have many posters who are just starting out and trying to learn. This makes it easier for them; I hope.

Party on!!

[Deckah]

TSH (3rd gen) : 3.36



Well.

Guess it's nice I finally got it.


I am trying to find a new clinic, but I will go back to the one I am currently going to even though I am just taking a step backwards. I just need to find a place that tests it all.

I got tested for mono just a few days ago which someone thought I had, but from what I hear mono clears within a few weeks to a month. Ive been sick for around 6 months(I forget) so that should had ruled that out. Anyways I was negative on mono, got bloodwork back and I didn't have it. So

[Andros]

Originally Posted by Deckah

TSH (3rd gen) : 3.36



Well.

Guess it's nice I finally got it.


I am trying to find a new clinic, but I will go back to the one I am currently going to even though I am just taking a step backwards. I just need to find a place that tests it all.

I got tested for mono just a few days ago which someone thought I had, but from what I hear mono clears within a few weeks to a month. Ive been sick for around 6 months(I forget) so that should had ruled that out. Anyways I was negative on mono, got bloodwork back and I didn't have it. So

In my opinion, you are hypothyrod as AACE recommends the range for TSH to be 0.3 to 3.0. Canada says less.

I would feel horrid if my TSH was that high. Most of us feel best at one or less.

Yes; you do need to find a place to test it all. That would be most helpful to you.

How are you feeling???

It is very discouraging to not feel well and to have to advocate for one's self at the same time. We hope to be able to help you do that.

Hang in there and do actively seek out a place were you can get not only the TSH but the FREE T4 and FREE T3 as well as some of those antibodies listed.

Let me know if you need the antibodies' list again. I will provide it if you do.

Glad you did not have mono; who thought that you might have?

[Deckah]

One of the docs I went to. I was examined and he claimed I had an enlarged spleen. He examined me by touch


Anyways I feel fantastic except my hair is falling out and my eyes feel funky. To do that and be smiling at the same time makes me feel like I got something mentally wrong with me

I think I am developing chronic fatigue, but it varies by day. I have still not smoked since about a week and some days. I don't really crave that bad, which is weird. My fatigue is basically, "oh hey my eyes feel a bid heavy/tired, let me lay down for 3 minutes". Well I end up falling asleep for 3 hours then wake up, feel like **** with my eyes a bit dry, then 20min later I am back fully functional.

I think I just need to replace my batteries.


Anyways, is the TSH really all that bad? From the way you made it sound, I should be looking like E.T. by now.



Another thing about my eyes. They are pretty stagnant, the lids are still a bit swollen, but that is about it.

[Deckah]

I am a bit confused about TSH now. I got a reference range of "0.40-4.50 mIU/L".

I seen some other readings online stated under 5.0 while it seems endos recommend under 3.0?

If 3.0 is the case, I take it that a lot of people are getting screwed over and misdiagnosed a bunch of times. I can't begin to imagine how many people are depressed right now due to this. Then again I probably should had done my due-diligence before asking this question. Sorry

[Lovlkn]

2nd opinion

Anyways, is the TSH really all that bad? From the way you made it sound, I should be looking like E.T. by now.

YES! This is a bit high - with that range a TSH of 2 would be max of acceptable, for me anyway

[Deckah]

I called around 4 different endocrinologist clinics and 3 of which couldn't get an answer on my TSH, 1 of them said it was normal. Every single place I called would need me to be referred in. I guess it's a piggy-back system.

Anyways, I am going into a new lab to get a new blood test with all of the above done(thx andros). No halfassery this time I just got to wait 6 or so days until I get that done, then the wait for results.

[Andros]

Originally Posted by Deckah

One of the docs I went to. I was examined and he claimed I had an enlarged spleen. He examined me by touch


Anyways I feel fantastic except my hair is falling out and my eyes feel funky. To do that and be smiling at the same time makes me feel like I got something mentally wrong with me

I think I am developing chronic fatigue, but it varies by day. I have still not smoked since about a week and some days. I don't really crave that bad, which is weird. My fatigue is basically, "oh hey my eyes feel a bid heavy/tired, let me lay down for 3 minutes". Well I end up falling asleep for 3 hours then wake up, feel like **** with my eyes a bit dry, then 20min later I am back fully functional.

I think I just need to replace my batteries.


Anyways, is the TSH really all that bad? From the way you made it sound, I should be looking like E.T. by now.



Another thing about my eyes. They are pretty stagnant, the lids are still a bit swollen, but that is about it.

No, your TSH is not all that bad but clearly you do not feel well. And we are all different as well. Could be you have sort of adjusted to feeling poorly. Most of us have as thyroid disease can be insidious.

And also, your TSH implies hypothyroid but you did not have
Free T4 or Free T3 nor any antibodies tests. It is very very possible for you to be hyperthyroid as well. The TSH does not always reflect what is "really" going on on a "stand alone" basis. The other tests are needed to get the whole picture.

[Deckah]

Alright I just got confirmation that the place I was going to use only does TSH/T3/T4 , so looks like back to the drawing board.

I didn't mention earlier, but I did have one thing on my test that was abnormal.

Absolute Monocytes: 1071 H Reference(200-950).

I didn't think it meant anything since they didn't bring it up, but it seems related to an infection that I could possibly have. I wasn't ill at the time of doing the test so I will bring it up with them.


Thanks for the previous replies.