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I am so tired and tired of searching for answers. I have total thyroidectomy in 1994 due to papilary carcanoma (cancer). I have been on the thyroid hormone nightmare ever since. My memory has never been the same and its back to an all time low now. I don't remember people I have known all my life, let alone what I did yesterday. Also fatigue has become debilitating and weight gain is out of control.

The protocol is to keep your thryoid levels high or TSH supressed. A couple years ago, I was told that after 10 years we need to get TSH to more normal level as it was bad for my heart to be at such high levels - (I have never substaniated this). They lowered me from .175 to .15 on Synthroid, which sent me into sever Hypo state. I finally convinced Endo to let me alternate between .15 and .175 which still led to hypo symptoms but thought I had to live with it. End of last year, lowered again to .15 - big mistake. I am miserable. I can't make it through the day without napping.

I am now thinking that I might have been able to solve some of this earlier. My memory scares me and the fatigue is disabling me and the weight gain depresses me - there has got to be more answers.

My Cortisol was high on last fasting blood work, TSH was .946, T4 12.3, Free Throxine uptake 3.8, T3uptake 31 -- Coritsol was 28.3

I can't seem to find a decent doctor who listens. I really think I need to pursue the Adrenal Gland and Cortisol issue - Can any one guide me?? Any thing is helpful at this point. I am reading again, but my brain is so foggy and I am so tired its hard. Thanks, Kim
 

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You poor kitten. Do you live near a university teaching hospital? An endocrinologist at a teaching hospital might be able to guide you. I think sometimes that doctors get bored and or frustrated with patients who are complicated and don't respond positively. Lots of doctors I know love a good anecdotal success story. Please use what energy and resources you have to look for a more caring doctor. I wish you well.
 

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carmeninfl said:
Lady you need to find a different doctor. !!

Keep looking until you find one, that listens. Your doctor is messing you up.

You must go to Dr. Lowe's web site.
THYROID DOCTORS AND INFORMATION DONT SEEM TO GO HAND IN HAND. GO TO YOU REG DR AND DEMAND INFORMATION,
 

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Go to your reg dr and demand info, get him to do the calling.my thyroid dr is an inept idiot so i know what you mean, i have an appoitment with my reg dr on tuesday and i;m not leaving till i get some answers, so give it a try or go to the emergency room and talk to someone there. Good luck

EDITED BY MOD 1 - PLEASE DO NOT USE CAPS AT THE BEGINNING OF EVERY WORD.
 
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