I am so tired and tired of searching for answers. I have total thyroidectomy in 1994 due to papilary carcanoma (cancer). I have been on the thyroid hormone nightmare ever since. My memory has never been the same and its back to an all time low now. I don't remember people I have known all my life, let alone what I did yesterday. Also fatigue has become debilitating and weight gain is out of control.
The protocol is to keep your thryoid levels high or TSH supressed. A couple years ago, I was told that after 10 years we need to get TSH to more normal level as it was bad for my heart to be at such high levels - (I have never substaniated this). They lowered me from .175 to .15 on Synthroid, which sent me into sever Hypo state. I finally convinced Endo to let me alternate between .15 and .175 which still led to hypo symptoms but thought I had to live with it. End of last year, lowered again to .15 - big mistake. I am miserable. I can't make it through the day without napping.
I am now thinking that I might have been able to solve some of this earlier. My memory scares me and the fatigue is disabling me and the weight gain depresses me - there has got to be more answers.
My Cortisol was high on last fasting blood work, TSH was .946, T4 12.3, Free Throxine uptake 3.8, T3uptake 31 -- Coritsol was 28.3
I can't seem to find a decent doctor who listens. I really think I need to pursue the Adrenal Gland and Cortisol issue - Can any one guide me?? Any thing is helpful at this point. I am reading again, but my brain is so foggy and I am so tired its hard. Thanks, Kim