Hi!
A bit of my backstory:
I was diagnosed with graves at 12 and took tapazole until I was 22. At that point I was weened off meds and did great without them for many years.
About a year ago at 29, I started feeling groggy, sleeping tons and gaining weight. My levels were on the low side of normal, tipping toward HYPO thyroid. The endo put me on a .05 (50mg) Levothyroxine dose and I started to lose weight and feel better.
My Dr left his practice in NYC with 3 weeks notice, so I was left without treatment for four months until I could get into a new Endo.
Around this time I was starting to feel the same as I did before starting the dose, sleepy, tired, low pulse, and weight gain. I workout 6 days a week and run many miles, so this isn't normal for me.
I finally saw a new DR, who tested TSH and said it was smack in the middle of normal range. She told me she doesn't test T3 or T4 because if the TSH was off the test would automatically do it.
She told me a .05 (50mg) dose was essentially a water pill and I could probably even go off it or try more to see if my symptoms got better.
I then started doubling my dose to 100mg, two pills a day to see if I would feel better. It has been over 3 weeks and I am feeling much better, sleeping less, dropping weight easier and have a heart rate of 75 bpm resting.
I called to let me DR know I was feeling better, and she got angry saying that 100mg was a dangerous high dose and could cause cardiac problems and bone breakage.
I'm confused since she told me what I was taking before was essentially a water pill placebo and hardly did anything.
She wants me to have more bloodwork now but says she will not prescribe me 100 a day because I had a normal range TSH.
What do you guys think about this? Is 100mg that dangerous? Should I get a second opinion? Also if it is should I drop back to 50mg asap or will I need to slowly go back to 50?
A bit of my backstory:
I was diagnosed with graves at 12 and took tapazole until I was 22. At that point I was weened off meds and did great without them for many years.
About a year ago at 29, I started feeling groggy, sleeping tons and gaining weight. My levels were on the low side of normal, tipping toward HYPO thyroid. The endo put me on a .05 (50mg) Levothyroxine dose and I started to lose weight and feel better.
My Dr left his practice in NYC with 3 weeks notice, so I was left without treatment for four months until I could get into a new Endo.
Around this time I was starting to feel the same as I did before starting the dose, sleepy, tired, low pulse, and weight gain. I workout 6 days a week and run many miles, so this isn't normal for me.
I finally saw a new DR, who tested TSH and said it was smack in the middle of normal range. She told me she doesn't test T3 or T4 because if the TSH was off the test would automatically do it.
She told me a .05 (50mg) dose was essentially a water pill and I could probably even go off it or try more to see if my symptoms got better.
I then started doubling my dose to 100mg, two pills a day to see if I would feel better. It has been over 3 weeks and I am feeling much better, sleeping less, dropping weight easier and have a heart rate of 75 bpm resting.
I called to let me DR know I was feeling better, and she got angry saying that 100mg was a dangerous high dose and could cause cardiac problems and bone breakage.
I'm confused since she told me what I was taking before was essentially a water pill placebo and hardly did anything.
She wants me to have more bloodwork now but says she will not prescribe me 100 a day because I had a normal range TSH.
What do you guys think about this? Is 100mg that dangerous? Should I get a second opinion? Also if it is should I drop back to 50mg asap or will I need to slowly go back to 50?