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Discussion Starter · #1 ·
Wondering where everybody has gone??

If you are a new poster or a poster from the past and just checking in please reply so we know you are still around.
 

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Exactly...the forum has just about died. I do think almost everyone is on facebook groups nowadays. The problem with those are they are like the wild west...with opinions all over the place and varying quality. Generally they are mostly alternative medicine based. Probably because people who are struggling are going to try anything. Not that I didn't go that route a bit also...but I find it's best to take input from all sides instead of completely dismissing something.

I'm still here though and check in to see if anyone posts often.
 

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Discussion Starter · #3 ·
36 views and 1 post so there is some activity but obviously more lookers than posters.
 

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I notice that as well. Sometimes it's hard to tell what those views are. My guess is many of them are people doing google searches and coming across a specific topic.

I do worry about people on the facebook groups. Thyroid medication is a tricky thing and you really need to know what you are doing when using it. And, I saw a lot of people getting advice to go on thyroid medication when their numbers looked pretty darn normal.

I'm sure some people were able to find help in a good way, but I also think there was a lot of bad advice being provided.

hashimoto's is a tricky disease for treatment I'm finding. And it's very debatable on how it's treated by both alternative and conventional providers.

I do believe in the diet component to some extent. I'm doing alternative med diets, but it could just be that I'm eating healthier and that's why its helpful. I do believe in trying to slow the autoimmune attack even if that's not really something conventional doctors recognize.

However, I'm not sure about the testing analysis done by alternative medicine. Focusing so much effort on RT3 despite it being a debatable test. I've even seen some alternative medicine doctors saying that it is not a good test, but many say it's the main test. I've seen indications that the test doesn't mean as much if you are on thyroid medication, in that it messes up the results.

I will say that doctors are probably a bit too much one trick ponies with T4 only medication and review labs based on that. As you figured out, many people without their thyroids need combination therapy. Not everyone, but it seems like quite a few people do from what I've seen in studies and online.

I think NDT is an interesting product, but I don't think I'd want to try it. Partially because I don't think regular doctors know how to dose it. And I don't trust alternative doctors enough. Based on everything I've seen I rather just add some T3 to my T4. It seems easier to manage that. But I also don't know if endos are good at managing the combo meds. For now I'm doing pretty good on T4 only despite bad FT3 numbers. I'm interested to see if that number is better now that I'm feeling better, but I'm guessing it's not much. My endo does not believe in using FT3, but she's nice enough to order it for me. Even if it's not used by them, I still want to have in case they do decide to use it in the future.

Long random rant there. Wish it was a bit more clear cut. I wonder how many other diseases are like this...having stark differences between alternative and conventional medication.
 

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I'm still here....

I just don't visit as much as b4 feeling much better.

I still check weekly for any new posts where maybe I can help someone like others did for me.

I would have been lost and still sick if other members didn't help me understand all this thyroid crap....

I was also very alone when all this started to happen to me.....

It helped a lot to know I wasn't the only one not getting better with standard thyroid treatment.

I felt better communicating with people from all over suffering with the same ailment I have.

I owe this forum & am glad to be able to play it forward for someone else.

jamie~
 

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I do wish more came here...but I spend quite a bit of my time on a Men's group on FB...it's a small group with just over 300 men. It's been quite helpful actually.

FB groups are nearly all alternative medicine groups. Or a mix of alternative and not. either way they can be difficult to deal with. Some of the groups are very large with 50K+ people in the group. And the help you get is all over the place. Like, 30 people saying you have to change diet and 30 saying you don't. I got kicked out of one group that was hardcore alternative. It was for the best because that group was a mess. It is the most popular group unfortunately. Just a lot of bad advice on there. Not because they are alternative, but because some of the moderators give bad advice (not even normal for alternative medicine). Other moderators seem to be making money on what they are doing...so anyways, I'm good with not being in there.

Any of the really large groups are hard to stomach. Just a free for all quite frankly.

The little men's group is very good though. Small enough to be reasonable. And good discussions. It's a good group of guys even if they are all different walks of life.

I've become a bit less into the alternative stuff, though I still follow the diet (no gluten, dairy, soy, added sugars, corn, veggie oils, etc). The only foods I seem to have actual bad reactions to are legumes and dairy. My family has a history of dairy issues, so I'm not too surprised by that. But Legumes surprises me a bit.

Things are getting better for me. I'm on 112 synthroid now and feeling pretty good. I still have a few weeks before I can test to see where things are.
 
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